Archive for the ‘Living With Parkinson's’ Category

Pitiful, Pitiful Me

Wednesday, November 25th, 2009

Depression is real.  It is not unusual for Parkinson’s sufferers to have more trouble with depression than with the symptons of the disease.  If you are suffering from depression, realize that God loves you and He will never leave you. Turn your life over to Jesus Christ and experience abundant life.

 

Pitiful, pitiful, pitiful me!
I ask “Why me?” There is no answer, yet it is still my plea.
You say fight for my life; You say fight to be free!
In my world hope is not always easy to see.
It is hard to muster much might; I am too tired to fight.
Often I am relieved to have just made it through the night.

Just as I think I have wrestled my life back;
Another thing happens, just one more attack.
I heard you say, “Think positive thoughts, They will help you to grow.”
My life is not your life – I live on a level below.

Fight for control, day by day.
That is impossible, too tough, there is no way you say.
By the hour or minute….even if your fight becomes thought by thought,
You must never give in, the fight must be fought.

Depression is real,
Never make a deal.
Depression is never your friend!
Can’t let yourself give in.
You hope, it will always try to steal.
Depression is oh, so real.

So what do you do when there seems no where to go?
Depression can be such a recurring foe.
There is only one truth that you need to know.
God is there with us no matter how low we go.
Just remember to never give up… Struggle to fight,
God is our source of everlasting light!

I’m Getting Older

Monday, November 23rd, 2009

I am getting older each and every day.
I can’t do all the things that I could do in work or play.
Yes, I’m getting old,
Not as sharp as I once was or so I’m told.
At a dinner with family and friends;  I made a mistake, I spilled my drink.
Another day at the mall; to remember where I parked my car, I had to really think.
No matter what I do or how well it goes,
Let me make a mistake; you can see it happen, the anxiety grows.
People immediately jump to conclusion.
Is it the Parkinson’s or is it old age? which one is causing all this confusion?
No matter the facts,
Nothing is worse, we should just relax.
Mistakes or accidents can happen any day,
It doesn’t mean we need to be watched, not at work or at play.
All I ask is, just be fair, as you watch me get old.
I deserve to be a little eccentric, a little bold.

I think my new ATC(all terrain cane) will be a rewarding addition

Friday, November 20th, 2009

First there was the nextstep walking aid; then a walker for those times when you need a little more stability. Now there is an attachment for the NextStep that allows it to be used in sand.  I love to be at the beach and take pictures at sunrise. Recently I had found myself trapped at the sea shore, unable to move my feet. It was early in the morning and I just sat for about an hour until my family had got up for the day and could offer some assistance. This new attachment packs the sand under the plunger so that it does not stick down into the sand; allowing the NextStep ATC to perform like a NextStep performs on hard surfaces.

Is It Just An Old Man That You See?

Thursday, October 15th, 2009

What do you think when you look at me?
Is it just an old man that you see?
Oh how I would like to still be strong!
For my youth, of that I do long.

My manly physique is turned to fat;
Can no longer do this, have trouble doing that.
My speech is slurred, hard to understand;
Balance is not good, which makes walking less than grand.

I doze whenever I stop and sit for awhile…
At times my face is locked without any smile.
I drool and sometimes I can’t catch it at all…
Drips from my mouth on my shirt they do fall.

What do you think when you look at me?
Is it just an old man that you see?
Parkinson’s Disease, abilities taken away…
Things get worse each and every day.

I might not be able to perform as I could.
But, you can do something for me if you would…
Try to see past the old man that you see;
When you look at me, try to see me!

Another Day with Parkinson’s

Sunday, October 11th, 2009

This mornng I had a breakfast meeting. Frank Manson was picking me up at 7:15am. I woke up at 4:30am and decided to get up out of bed; I was extremely stiff and had trouble getting up into a standing position. I finally made it downsatirs to the kitchen and sat at the kitchen table. I got my medicines out for the day. Then I fixed me a bowl of cereal. Even though I was going out to eat breakfast, I had to eat cereal so I could take my medicine without getting sick. Took my medicine at 6am and by 7am it still wes not working; I still could not walk. I got in the vehicle at home with Frank at 7:15am and went into the restaurant. Still no relief from my medicine. I was just thinkng as much trouble as I had this morning, without my cane I would be trappped - unable to walk or go with Frank or go out to breakfast. The NextStep walking aid gives me my freedom. I am not held prisoner in my own home.  It does not make sense –  it just works.